researchPAINS has worked hard to establish a working relationship with the Patient Centered Outcomes Research Institute (PCORI) and to promote their funding of comparative effectiveness research to improve chronic pain care. To enable us to do this work, three years ago we established a PAINS Citizen/Leader Advisory Board as part of our community-based initiative Relieving Pain in Kansas City. This group is an activated, engaged group of individuals who live with chronic pain or care for those who do. They came together for one purpose—to promote and participate in establishing a research agenda that will transform the way pain is perceived, judged and treated. Originally, their interest and scope of influence was the Greater Kansas City area. However, that has expanded significantly.

Through PAINS, researchers around the country have become aware of this group of energized, educated and motivated people who live with chronic pain and have expressed interest in working with them. Most recently, they collaborated with both the University of Texas and the University of Kansas in submissions to PCORI in response to their funding announcement for Clinical Strategies for Managing and Reducing Long-term Opioid Use for Chronic Pain. PCORI’s board allocated $40 million for this initiative and has stated that they will make 3 or 4 grants. We should know at the end of July whether either of these proposals has been accepted.

In addition, PAINS was asked to serve on the Stakeholders Advisory Group for the RTI submission which includes (Duke, Vanderbilt, University of North Carolina and the VA of Raleigh/Durham).

The University of Maryland also asked PAINS and its Citizen/Leader Advisory Group to participate in the submission of a letter of intent to develop an online curriculum highlighting diversity issues in treating chronic pain. We are also submitting a proposal to PCORI for what they refer to as a Pipeline to Proposal Tier II grant which, if funded, will allow the Research Collaborative to further refine, define and develop patient and caregiver-centric comparative effectiveness research questions based on the collective prioritization of topics. We will continue to support and engage both people living with pain and researchers, as well as seek expertise from others across the country.

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