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National Leaders and Organizations Endorse Four Core Messages to Drive a Cultural Transformation in the Way Pain is Perceived, Judged and Treated

At the PAINS’ Collaborators Meeting held in Washington, DC from June 27-28, 2015, four core messages originally developed by the Consumer Pain Advocacy Task Force (CPATF) were presented by Cindy Steinberg in her “call to action.” The State Pain Policy Advocacy Network (SPPAN) convened CPATF in March 2014. The task force is comprised of national leaders and decision-makers from 17 nonprofit consumer advocacy organizations, including PAINS, all dedicated to patient well-being, effective pain treatment methods and promoting the National Pain Strategy Report. Since then, these core messages have been endorsed by more than 50 national leaders and organizations.

The four core messages are:

  • Chronic pain is a real and complex disease that may exist by itself or be linked with other medical conditions.
  • Chronic pain is both an under-recognized and under-resourced public health crisis with devastating personal and economic impact.
  • Effective chronic pain care requires access to a wide range of treatment options, including biomedical, behavioral health and complementary treatment.
  • Denying appropriate care to people with chronic pain is unethical and can lead to unnecessary suffering, depression, disability and even suicide.

Those who have endorsed these messages are:

Susan Hayes Affholter, MPH Public Health Pain Consultant Lansing, Michigan

Always Think Comfort

American Academy of Family Physicians (supporting)

American Academy of Pain Medicine

American Association of Nurse Anesthetists (AANA)

American Chronic Pain Association

American Pain Society

American Public Health Association

American Society for Pain Management Nursing

Paul Arnstein, PhD, RN, FAAN Clinical Nurse Specialist for Pain Relief Massachusetts General Hospital

Dr. Leon F. Bradway, DPT, MS, OMPT Sports Back and Pain Management Clinic Bryan, Texas

Pat Bruckenthal, PhD, APRN, FAAN Immediate past president American Society for Pain Management Nursing

Maggie Buckley Volunteer Patient Advocate

Caregiver Action Network

Center for Practical Bioethics

Central Pain Syndrome Foundation

Jan Favero Chambers President/Founder National Fibromyalgia & Chronic Pain Association

Chronic Pain Research Alliance

Collaborative for Palliative Care

Mugur V. Geana, MD, PhD Director, Center for Excellence in Health Communication to Underserved Populations University of Kansas School of Journalism and Mass Communications

The Gerontological Society of America

Elizabeth Gilbertson Chief of Strategy, UNITE HERE HEALTH

Rae M. Gleason Medical Education & Research Director National Fibromyalgia & Chronic Pain Association

Robin Hamill-Ruth, MD

Gwenn Herman, LCSW-C, DCSW Executive Director Pain Connection-Chronic Pain Outreach Center, Inc.

Malcolm P. Herman, Esq. Law Offices of Malcolm P. Herman Director Pain Connection- Chronic Pain Outreach Center, Inc.

Michael Hockley

Robert W. Hutchison, Jr., Pharm.D., BCACP Associate Professor/ Ambulatory Care Pharmacist Texas A&M University, Rangel College Of Pharmacy

Barby Ingle, President Power of Pain Foundation

Interstitial Cystitis Association

Karen Kiefer, RN-BC Garden State Chapter of the American Society of Pain Management Nursing

Lemons Center for Behavioral Pain Management

Jim G. Lemons, Ed.D. Director Lemons Center for Behavioral Pain Management

Brian Levy, EMT, Board Member Power of Pain Foundation

Marbeth Levy, Vice President Power of Pain Foundation

Janice Lynch Schuster Writer, pain patient, activist

Massachusetts Pain Initiative

Martha Brown Menard PhD, LMT Director of Crocker Institute

Millennium Health

David Nagel, MD

National Fibromyalgia & Chronic Pain Association

National Patient Advocate Foundation

Carolyn Noel PAINS Webmaster Volunteer Patient Advocate

Pain Action Alliance to Implement a National Strategy (PAINS)

The Pain Community

Pain Connection

Power of Pain Foundation

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Jack Siar, RN

Kathleen Sitley Brown, PhD Rehabilitation Psychologist

State Pain Policy Advocacy Network (SPPAN)

Cindy Steinberg National Director of Policy and Advocacy US Pain Foundation

Raymond C. Tait, PhD Professor, Neurology & Psychiatry Vice President, Research Saint Louis University

The TMJ Association

Trust for America’s Health

Bob Twillman, Ph.D., FAPM Executive Director American Academy of Pain Management

US Pain Foundation

Barbara Waitt

Lonnie Zeltzer, MD Director, Children’s Pain and Palliative Care Program Distriguished Professor of Pediatrics, Anesthesiology, Psychiatry and Biobehavioral Sciences David Geffen School of Medicine at UCLA

NOTE: The scope of these endorsements applies to the four core messages only and is not intended to imply agreement with or endorsement of any other policy or program of PAINS.

We invite others to join us in endorsing these messages by contacting us and urge the Department of Health and Human Services to incorporate these messages into the final version of the National Pain Strategy Report.