Organization Spotlight | PAINS - Pain Action Alliance to Implement a National Strategy

National Fibromyalgia Association

PAINS Project — Mon, 17 Apr 2017 16:44:53 +0000

Who They Are Founded in 1997 in Orange, California, by Lynne Matallana and Karen Lee Richards, the National Fibromyalgia Association (NFA) is the largest nonprofit [501(c)3] organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and Karen became acquainted in the mid-1990s through an online fibromyalgia (FM) chat group. Both women […]

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American Academy of Pain Medicine

PAINS Project — Thu, 23 Feb 2017 13:37:04 +0000

Who They Are The American Academy of Pain Medicine (AAPM) is the medical specialty society representing physicians practicing in the field of pain medicine. As a medical specialty society, the Academy is involved in education, training, advocacy, and research in the specialty of pain medicine. The practice of pain medicine is multi-disciplinary in approach, incorporating […]

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Consumer Pain Advocacy Task Force (CPATF)

PAINS Project — Tue, 24 Jan 2017 15:35:41 +0000

Who They Are The Consumer Pain Advocacy Task Force is comprised of 16 organizations working to improve the well-being of those living with chronic pain. They are united with one goal – to work collectively to promote, support and monitor the implementation of the National Pain Strategy. What is the National Pain Strategy? Simply put, the […]

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Society for Pediatric Pain Medicine

PAINS Project — Tue, 06 Dec 2016 11:26:52 +0000

The Society for Pediatric Pain Medicine (SPPM) is a Society organized within the Society for Pediatric Anesthesia. The SPPM concept originated with directors and key leaders of acute and chronic pediatric pain medicine programs, who believed there was a need for a new society because of rapid advancement of highly specialized knowledge in the field, a […]

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American Physical Therapy Association

PAINS Project — Sat, 15 Oct 2016 11:45:46 +0000

The American Physical Therapy Association (APTA) is an individual membership professional organization representing more than 93,000 member physical therapists (PTs), physical therapist assistants (PTAs), and students of physical therapy. APTA seeks to improve the health and quality of life of individuals in society by advancing physical therapist practice, education, and research, and by increasing the […]

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National Psoriasis Foundation

PAINS Project — Mon, 15 Aug 2016 14:10:57 +0000

The National Psoriasis Foundation (NPF) is a non-profit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those affected. Founded in 1966 from a tiny classified ad in a Portland, Ore. newspaper, the Psoriasis Foundation has evolved to become the leading patient advocacy group for the 7.5 million […]

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Kids Get Arthritis, Too

PAINS Project — Tue, 19 Jul 2016 14:05:29 +0000

Mission: The Arthritis Foundation’s online home for the 300,000 families who live with juvenile arthritis is KidsGetsArthritisToo.org. Their Eductional Rights Toolkit is a set of resources parents can use to help ensure success at school. There are checklists, forms and videos that cover topics from educational rights to school communication. What They Do: Advocating for […]

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American Migraine Foundation

PAINS Project — Thu, 23 Jun 2016 03:57:53 +0000

Mission: The American Migraine Foundation is a non-profit foundation supported by the American Headache Society® and generous donors dedicated to the advancement of migraine research. The mission of the American Migraine Foundation is to support innovative research and education that will lead to improvement in the lives of those who suffer from migraines and other disabling […]

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LymeDisease.org

PAINS Project — Sun, 15 May 2016 19:00:27 +0000

Mission: Founded in 1989, LymeDisease.org (LDo) advocates nationally for quality accessible healthcare for patients with Lyme and other tick-borne diseases. They are committed to shaping health policy through advocacy, legal and ethical analysis, education, physician training and medical research. Their mission is to prevent Lyme disease, prevent early Lyme disease from becoming chronic and to obtain access […]

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International Pelvic Pain Society

PAINS Project — Tue, 15 Mar 2016 20:14:58 +0000

Mission: The International Pelvic Pain Society was established in 1996 with two primary objectives: To educate health care professionals how to diagnose and manage chronic pelvic pain, thereby changing the lives of patients worldwide. To bring hope to men and women who suffer from chronic pelvic pain by significantly raising public awareness and impacting individual […]

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