To better understand what researchers should know before engaging in patient-centered outcomes research with the chronic pain community, the University of Maryland School of Public Health, in collaboration with PAINS and the National Research Council, is looking for patients living with chronic pain and their caregivers to attend a one-day working meeting in Pittsburgh, Pennsylvania, on May 17, 2017. The meeting will be held 10:00 am – 3:30 pm in rooms 401/402 of the David L. Lawrence Convention Center in Pittsburgh, Pennsylvania. To facilitate your participation, we can provide a stipend to cover your travel expenses and time, as well as lunch and refreshments during the meeting.

The purpose of this one-day working meeting is to discuss approaches for including community stakeholders in cultural competency/health literacy training for researchers interested in engaging in patient centered outcomes research (PCOR) and the added value of using patients as teaching partners. This working meeting directly addresses the National Pain Strategy, which calls for improvements in “discipline-specific core competencies, including basic knowledge, assessment, effective team-based care, empathy, and cultural competency.”

During our meeting, we will review findings from an updated literature review of the role of patients/caregivers in health professional education, as well as findings from focus groups and in-depth interviews with patients living with chronic pain and chronic pain researchers. Most importantly, we will tease out together the key principles of a cultural competency/health literacy curriculum for patient-centered outcomes researchers, recommended evaluation and assessment methods, and approaches to measuring patient engagement, and successful models.

If you are willing to give a little of your time to help inform implementation of this important aspect of the National Pain Strategy, please confirm your attendance with Dr. Olivia Carter-Pokras at by April 21, 2017.