Who They Are
Founded in 1997 in Orange, California, by Lynne Matallana and Karen Lee Richards, the National Fibromyalgia Association (NFA) is the largest nonprofit [501(c)3] organization working to support people with fibromyalgia and other chronic pain illnesses. Lynne and Karen became acquainted in the mid-1990s through an online fibromyalgia (FM) chat group. Both women had seen numerous doctors before receiving a diagnosis and they were concerned that many people with FM were not receiving the medical attention and support that they desperately needed. Before long, the pair was sharing ideas about helping others with FM. They concluded that there was very little reliable information about this misunderstood and debilitating condition—and that patients and health care providers needed to unite to ensure helpful information was easily accessible to those with this chronic disorder .
The National Fibromyalgia Association is a 501(c) 3 nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.
The NFA carries out a wide array of programs to meet their mission, including: Assistance to local support groups, patient information and education, The Fibromyalgia AWARE Magazine, Annual Fibromyalgia Awareness Day, Leaders Against Pain, participation in legislative lobbying, continuing medical education programs, supporting and facilitating fibromyalgia research, and an ongoing media presence.