By Suzanne Stewart – Published by National Pain Report

People ask me sometimes “how can you do this? How do you do that with systemic/full body CRPS and several other high pain illnesses?  How can you go here & there when you’re in pain & you don’t feel well?  Don’t  you get so very fatigued”?  I have had other chronic pain patients accuse me of “not having pain as bad as theirs”, because I try to do different activities.  Yes, I’m in pain daily, whether I stay at home or if I go and do a little something that will either make me smile; or where I can make someone else smile.  My pain is not me and I have choices to make.  I can choose to use just my cane, walker, motorized scooter or my wheelchair.  But every day that I am alive, I try to do something, anything. I don’t believe in letting the days go by without experiencing the taste, feel, touch, smell, sights & any sounds possible to enrich my life in any way that I can.  As recently as this past Summer 2016, I was diagnosed with S.I.B.O. and Gastroparesis.  These make eating unpleasant and going out for dinner almost impossible.  But you notice that I say “almost”, because I still choose to go out to eat as a social experience with my husband and/or friends.  I just choose wisely or have something to drink.  I try to convince myself that it’s the experience of getting out and getting up.

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